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social media accounts

There is a GIANT chronic illness community on social media! It helps make you feel more connected and less lonely for sure.

Check out these wonderful accounts, and as always. Please recommend us to others, if you know someone living with an invisible illness and we love to get connected with them!

Social Media Accounts
Our recommendations
Two Being Healthy - Em & Kate

Two Being Healthy - Em & Kate

We’re two sisters, two people with medical obstacles & two people on the road to being the healthiest us we can be.

Emily Brant

Emily Brant

Go From Always Sick to Perfectly Healthy & Radiant! Manifest Radiance is THE program designed to take you from constantly sick and exhausted, to perfectly healthy & radiant!

Lara Parker

Lara Parker

I talk about endometriosis a lot. I use cannabis every day for pain relief. & I am deputy director, buzzfeed.com. Author of Vagina Problems.

Nitika Chopra

Nitika Chopra

Chronic Illness Advocate, living with Psoriasis and Psoriatic Arthritis, Founder of ChroniCon and host of the Point of Pain Podcast

Maddie Scannapieco

Maddie Scannapieco

Helping you heal chronic “mystery” illnesses w/ food & lifestyle changes 🍋🥑• paleo • PCOS/SIBO/IBD/AI/Anxiety&more

Eliz Martin

Eliz Martin

A multiple sclerosis story. Sharing the in's and out's of thriving through life with a chronic illness and disabilities.

The Real Spoonies Unite

The Real Spoonies Unite

Chronic Illness Resources by Cassie & Chelsea 💗 ✨ Resource Hub- Classes & more👩‍💻 🎙 Podcast: The Real Life Show: Living w/ a Chronic Illness 🥄 Thriving not just surviving 🌻 Nonprofit coming soon!

Kirsten Curtis

Kirsten Curtis

Raising awareness for chronic & invisible illnesses

Natasha Lipman

Natasha Lipman

I’m a chronic illness blogger and part-time journalist based in London. Here you’ll find what is, essentially, a collection of the type of content that I wish I’d seen when I was first diagnosed, when I desperately needed to know that a chronic illness didn’t mean that my life was over.

Julie

@itsjustabaddaynotlife - Julie

My intention is to help those going through similar situations and to bring hope and inspiration. If my blog can help touch one person’s life out there then my mission will be complete!!

Mickey Trescott and Angie

@autoimmunepaleo - Mickey Trescott and Angie Alt

We serve the worldwide community of autoimmune sufferers who are ready to take recovery into their own hands through a wide variety of resources specific to the healing journey. We’ve both had the experience of recovering from a debilitating health crisis due to autoimmune disease–in fact, it’s how we met! When we started on our own respective journeys there were only a few people on the planet talking about eating and living well with autoimmunity. (Learn more in The History of the AIP Movement.) After our shared experiences using the Autoimmune Protocol to regain our health, we decided to join forces and create a community-driven site to help others who wanted to do the same.

Sodium Girl

@sodiumgirl

I’m a girl on a mission. Faced with kidney failure and a handful of other medical complications, I decided that nothing would stop me from having a full life and a full belly. I discovered that a well controlled, salt-free, low-sodium diet was key to staying healthy and active. But it took time and years of experimentation to achieve the delicate balance of eating well while maintaining a busy schedule and a budget. With a few years of salt-free cooking, eating, and living under my belt, I started this blog to give others a jump start in their own journey. Whether motivated by reasons medical or personal, I hope these tidbits of information are helpful to everyone seeking to lower their sodium intake without loosing the flavor and the thrill of eating. I also hope that others, not limited in their choices, will find my advice, recipes, and general shennanigans equally enlightening. So read on, chow down, and get cooking. Low-sodium can be flavor full.

Zoey Wright

@zoeywrightfitness - Zoey Wright

Empowering YOU through exercise and mindset to truly live YOUR best life 🦋 Founder of @empoweredwomanlife

The Spoon Theory

@butyoudontlooksick

Our goal is to help people living with chronic pain, illness or invisible disability. Writer of The Spoon Theory creator of #spoonie

Erica

@ambitiously_a_crohnie - Erica

Helping you navigate chronic illness through recipes, motivation, and a healthy dose of real talk!

Jesstaki moto fitness

@jesstakimotofitness

Helping you FEEL strong & confident through sharing my fitness & IBS journey.

Jodi Taub

@chronicillnesstherapist - Jodi Taub, LCSW

The Private Practice of Jodi Taub, LCSW is focused on providing high-quality assessment and treatment through a flexible and approachable perspective.

Chronic Illness

@chronicillnesshotline

We are a nationwide support text line for anyone with a chronic illness. This hotline is user-defined, meaning that the person who is texting in is in charge of what “chronic illness” means. It can include injuries, conditions, or pain. It can be before or after an official diagnosis.

This Thing They Call Recovery

@thingstheycallrecovery

My name is Jenny, I live in Scotland, and I'm a freelance graphic designer and disability advocate. I've suffered from chronic illness for a decade now, and that experience fuels my work here at This Thing They Call Recovery. I create health content that doesn't look like health content, using a mix of colour, illustration and handlettering to speak to the human side of sickness.

Exercise Invisible Illnesses

@activelyautoimmune

I have always been passionate about exercise and movement. I spent my youth swimming, dancing & running until several injuries lead to my diagnosis of Ehlers Danlos Type III. This was a challenging period and my first experience with chronic pain. However I managed to regain my freedom from a wheelchair by re-learning to walk, managing my pain & preventing injuries all through exercises! This ignited my passion to become a physiotherapist and help others. I later became diagnosed with Lupus where I had to learn how to rest alongside knowing when to push myself. I also developed complications from EDS including PoTS, gut dysmotility and Fowlers syndrome (urethra dysfunction meaning I now have a permanent catheter in situ) so I have had to constantly adapt how I exercise.

Healing lyme & chronic illness

@the_healing.place

healing lyme & chronic illness 🐝 detox • gut health • recipes 💕 self love • self care tips 💌 non toxic • eco 🌍 be kind ✨

Therese

@thespooniespirit - Therese

Hi – my name’s Therese. I’m not a Spoonie, I’m a psychologist, living in Sydney, Australia. The Spoonie Spirit is about finding ways to keep going and making the most of life, whatever the circumstances. We’re going to talk about some stuff that other people don’t – not even your doctors. Or especially not your doctors. But if you’re part of the Spoonie family then you’ll know what I mean when I say that it takes more than good medicine to keep going with your life – it takes inner strength, hope and sheer determination. And that’s what we mean by the Spoonie Spirit!

Akii

@adventuress.akii

I have POTs, hEDS, spinal stenosis, interstitial cystitis, vulvadynia, chronic migraine, MCAD & bilateral TOS. I was also born with Necrotising Enterocolitis & have been sick my entire life. This has made me really passionate about advocacy & making a difference for both mental & physical illnesses (visible or not). I’m a passionate diversity (body positivity, cultural & disability) activist + intersectional feminist. I love to travel and go on adventures, despite my chronic pain & disabilities.

The Chronically Honest

@thechronicallyhonest

Trying to HONESTLY illustrate the hardships of my chronic illness journey & raise awareness for IBD+

Autoimmune Sisters

@autoimmunesisters

Autoimmune Sisters is an international community that provides resources, support and community to all women with Autoimmune Disease. Autoimmune Sisters welcomes all women that are diagnosed with an autoimmune disease or undiagnosed and looking for support.

Ali DiGiacomo

@anothherdaywithra

Ali DiGiacomo ▪️Rheumatoid Arthritis Warrior👊🏼 ▪️Autoimmune Disease Fighter💉 ▪️NASM Certified Personal Trainer💪🏼 ▪️Film Industry Life🎬 ▪️Chronic Comedy🎭 ▪️Bi Pride🏳️‍🌈

Yoga with paulina

@with.paulina

Chronically Friendly Yoga Teacher 🎉 Rheumatoid Arthritis Warrior AutoImmune Disease Fighter 🌸💖 Founder of @_chronically_happy_

Invisible Not Imaginary

@_chronically_happy_

Invisible Not Imaginary 𝓡𝓾𝓷 𝓫𝔂 @with.paulina & @xchloeumplebyx 💪 Building a community of positive help for all Chronic Warriors 🧘🏼‍♀️

The Spoonie Motherhood

@thespooniemotherhood

✦ 𝙏𝙝𝙚 𝙎𝙥𝙤𝙤𝙣𝙞𝙚 𝙈𝙤𝙩𝙝𝙚𝙧𝙝𝙤𝙤𝙙 ✦ 🌻 FROM THE SPOONIE SISTERHOOD 🌞 Spoonie Motherhood 👣 Sharing our journeys to motherhood w/chronic illness #thespooniemotherhood

The Spoonie Sisterhood

@thespooniesisterhood

𝙏𝙝𝙚 𝙎𝙥𝙤𝙤𝙣𝙞𝙚 𝙎𝙞𝙨𝙩𝙚𝙧𝙝𝙤𝙤𝙙 ✦ 😸🤝🏼😸 💖 ✦ Where patients heal & grow TOGETHER: 🦋 ✦ Tag & 🏄‍♀️: @ & #thespooniesisterhood 🥄 ✦ @SPOONIEHQ for more❣️ 🌻 ✦ U MATTER + BELONG

Tessa livingwaterless

@livingwaterless

Tessa | living waterless Spoonie 🥄 rare + invisible illnesses Aquagenic Urticaria (water allergy) Depression • Anxiety • PTSD Pronouns: She/Her/Hers

Spoonie Box

@spoonie_box

Spoonie Box 🎁 Uplifting boxes for people with chronic illnesses 📍 London, UK 🌍 Ship Internationally 💌 contact@spoonie-box.com

Heylozzy- Chronic and mental illness

@heylozzy

Chronic and mental illness Living life despite chronic illness Fibromyalgia/pots Mental health advocate Brit in the USA Email for collabs

Mrcolitischrons

@mrcolitiscrohns

Mesha Moinirad. Educate & support those suffering with chronic illness. Official Global @coloplast Ambassador. Personal Trainer.