social media accounts

There is a GIANT chronic illness community on social media! It helps make you feel more connected and less lonely for sure.

Check out these wonderful accounts, and as always. Please recommend us to others, if you know someone living with an invisible illness and we love to get connected with them!

@autoimmunepaleo - Mickey Trescott and Angie Alt

We serve the worldwide community of autoimmune sufferers who are ready to take recovery into their own hands through a wide variety of resources specific to the healing journey. We’ve both had the experience of recovering from a debilitating health crisis due to autoimmune disease–in fact, it’s how we met! When we started on our own respective journeys there were only a few people on the planet talking about eating and living well with autoimmunity. (Learn more in The History of the AIP Movement.) After our shared experiences using the Autoimmune Protocol to regain our health, we decided to join forces and create a community-driven site to help others who wanted to do the same.

@sodiumgirl

I’m a girl on a mission. Faced with kidney failure and a handful of other medical complications, I decided that nothing would stop me from having a full life and a full belly. I discovered that a well controlled, salt-free, low-sodium diet was key to staying healthy and active. But it took time and years of experimentation to achieve the delicate balance of eating well while maintaining a busy schedule and a budget. With a few years of salt-free cooking, eating, and living under my belt, I started this blog to give others a jump start in their own journey. Whether motivated by reasons medical or personal, I hope these tidbits of information are helpful to everyone seeking to lower their sodium intake without loosing the flavor and the thrill of eating. I also hope that others, not limited in their choices, will find my advice, recipes, and general shennanigans equally enlightening. So read on, chow down, and get cooking. Low-sodium can be flavor full.

@activelyautoimmune

I have always been passionate about exercise and movement. I spent my youth swimming, dancing & running until several injuries lead to my diagnosis of Ehlers Danlos Type III. This was a challenging period and my first experience with chronic pain. However I managed to regain my freedom from a wheelchair by re-learning to walk, managing my pain & preventing injuries all through exercises! This ignited my passion to become a physiotherapist and help others. I later became diagnosed with Lupus where I had to learn how to rest alongside knowing when to push myself. I also developed complications from EDS including PoTS, gut dysmotility and Fowlers syndrome (urethra dysfunction meaning I now have a permanent catheter in situ) so I have had to constantly adapt how I exercise.

@thespooniespirit - Therese

Hi – my name’s Therese. I’m not a Spoonie, I’m a psychologist, living in Sydney, Australia. The Spoonie Spirit is about finding ways to keep going and making the most of life, whatever the circumstances. We’re going to talk about some stuff that other people don’t – not even your doctors. Or especially not your doctors. But if you’re part of the Spoonie family then you’ll know what I mean when I say that it takes more than good medicine to keep going with your life – it takes inner strength, hope and sheer determination. And that’s what we mean by the Spoonie Spirit!

@adventuress.akii

I have POTs, hEDS, spinal stenosis, interstitial cystitis, vulvadynia, chronic migraine, MCAD & bilateral TOS. I was also born with Necrotising Enterocolitis & have been sick my entire life. This has made me really passionate about advocacy & making a difference for both mental & physical illnesses (visible or not). I’m a passionate diversity (body positivity, cultural & disability) activist + intersectional feminist. I love to travel and go on adventures, despite my chronic pain & disabilities.